Projects

This study focuses on designing the digital application in collaboration with patients and healthcare professionals, ensuring it is tailored to meet the needs of immunotherapy patients.

This will be a study in 40-60 South Yorkshire patients. The study will test the feasibility of the new digital pathway and digital application and identify any improvements needed before the main study (E-IMMUNE 2).

The main study will look at the patient experiences and outcomes on the new digital pathway compared with those treated with current care. We will record instances of adverse health due to immunotherapy, how severe these are, how they are treated and how they rate their quality of life.  We aim to recruit around 500 immunotherapy patients from South Yorkshire and West Yorkshire who are receiving treatment in Sheffield and in Leeds. 

This study will develop a new digital pathway for patients experiencing 'late effects' of immunotherapy which continue or begin after their treatment has ended.

This study will look at  acceptance, empowerment, user experience and preferences of patients and healthcare professionals in relation to the new digital pathway

This study will look at why patients decline to participate in the immunotherapy digital pathway study, how these patients currently access and interact with digital technologies and what steps can be taken to respond to patient concerns by considering new ways of enabling them to use digital technologies.

This work looks at how the new digital pathway impacts on wellbeing, including how the symptoms of immunotherapy are managed and the cost of providing these. Any improvements on the new pathway must be considered alongside the cost of setting up and maintaining it however, in order to see if it provides value for money to the NHS.

This is a project to develop a National Immunotherapy late-effects Trusted Research Environment (TRE) database for the UK. This will help to identify patterns in immunotherapy late effects and enable researchers to share data and collaborate with each other more efficiently, accelerating research progress.

Find out about ways that patients and family members are involved in our research