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I am interested in patient and public involvement
I am interested in patient and public involvement
If you are interested sharing your views and experiences of immunotherapy treatment as a patient or as a family member, we want to hear from you! The questions and answers below provide further information. You can also click on the links below to find out more about our:
What is patient and public involvement and engagement (PPIE) in research?
What is patient and public involvement and engagement (PPIE) in research?
The term ‘patients and public’ includes current, former and potential patients, carers, people who use health and social care services, and people from organisations that represent people who use these services.
Patient and public ‘involvement’ ensures that research is carried out ‘with’ or ‘by’ patients and or members of the public rather than ‘to’, ‘about’ or ‘for’ them. 'Engagement' is about efforts to share information about research with the public and to promote two-way communication and dialogue. This includes, for example:
• Ensuring all research aspects are ethical, relevant and acceptable from a public point of view
• Commenting on and developing research materials
• Providing oversight and advice on the implementation of research studies
• Developing a communication plan to promote the sharing of research results
• Being involved in sharing research results
Why is PPIE important for the E-IMMUNE programme?
Why is PPIE important for the E-IMMUNE programme?
We believe that excellent patient and public involvement and engagement is an essential part of health and social care research and has been shown to improve its quality and impact. We recognise the valuable input that can be provided from the point of view of people who may benefit from the research.
We have sought patient input from the early planning stages of the Programme and 6 patients who have received immunotherapy contributed to writing the research application, particularly in respect of their feelings about the digital platform/app. They also reviewed and suggested amendments to the Lay Summary of the programme.
We will ensure that our PPIE Advisory Group will be represented in all work packages, in all key discussions and on the Programme Board. At the end of the Programme, we hope PPIE representatives will agree to be involved in communicating the results of this research study.
What opportunities are there for getting involved?
What opportunities are there for getting involved?
The E-IMMUNE Programme is setting up a PPIE Advisory Group and a PPIE Advisory Network. Please click on the links below to find out more...
How can I find out more?
How can I find out more?
Please click here to find out more about the PPIE Advisory Group
Please click here to find out more about the PPIE Advisory Network
You can also contact the E-IMMUNE Programme Administrator, Sarah Williams, by phone on 0114 215 9519 or by email at e-immune@sheffield.ac.uk
I would like to take part in the research study
I would like to take part in the research study
If you are receiving immunotherapy treatment for cancer or you are a carer or family member of patients who have received immunotherapy, you may be eligible to take part in our study.
We will soon be recruiting to our Co-Design study, where we will be seeking participants who have experienced immunotherapy treatment, or their family members, to share their views on the new digital technology we plan to test in our research.
Please speak with your clinical team to find out more.
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